Guidelines

Guidelines for talking with all patient partners
- Notify in advance; schedule a convenient time.
- Include trusted transplant team members.
- Recognize caregivers and patients as experts.
- Acknowledge patient partners as key decision-makers.
- Allocate dedicated discussion time.
- Sit down; explain using PARTNER’s questions.
- Speak age-appropriate language.
- Include pauses for questions and concerns.
- Directly ask for thoughts; address anxiety.
- Actively listen; be transparent.
- Sit down; explain using PARTNER’s questions.
- Respect schedules.
- Provide clear post-discussion contact information.
Guidelines for talking with children and teenagers
- Create a comfortable environment for individuals and families.
- Include trusted transplant team members.
- Acknowledge the child as an individual.
- Speak directly to them.
- Remind them they are experts on their experiences.
- Recognize caregivers as allies and interpreters.
- Avoid assuming young patients’ opinions align with their parents.
- Tailor interactions to age and developmental stage.
- Integrate play for younger children.
- Provide communication options for older children and teenagers.
- Acknowledge young people as key decision-makers.
- Explain the project using age-appropriate language.
- Include pauses for questions and concerns.
- Directly ask for their thoughts.
- Address anxiety and offer follow-up support.
- Listen actively; use open-ended questions.
- Provide examples for comfortable communication.
- Clearly present available options for their choices.